Empowering Parents and Professionals for over forty years
19th Annual Autism Society of Greater Phoenix Conference
Empowering Parents and Professionals
October 19th and 20th, 2018
Dawn Winkelmann, M.S, CCC-SLP is a pediatric Speech and Language Pathologist and Feeding Specialist. She has treated thousands of kids across the globe by helping families overcome picky eating stages and food refusals, while adding new foods into their diet. Her high success rate is attributed to Ms. Dawn bringing her education, experience, sense of humor and her favorite feeding products to the family dinner table. She adapts complicated feeding/swallowing research and makes it practical & easy for parents. (Waiting for approval for CEUs for speech pathologists)
This course is offered for up to .55 ASHA CEUs (intermediate level, Professional area)
Pamela Crooke, PhD, CCC-SLP, Chief Strategy Officer
Pamela J. Crooke is the Chief Strategy Officer of Research, Content, Clinical Services and the Director of Social Thinking Training & Speakers Collaborative.
Pam has co-authored, with Michelle Garcia Winner, five award-winning books related to Social Thinking: Socially Curious and Curiously Social, You Are a Social Detective, Social Fortune or Social Fate, Social Town, and their most recent book geared to adults, Social Thinking at Work: Why Should I Care? She and Winner collaborate on writing articles and blogs that appear on the Social Thinking website and in a wide array of publications.
(Waiting for approval for CEUs for speech pathologists)
This course is offered for up to .55 ASHA CEUs (intermediate level, Professional area)
Friday includes Feeding Track with Dawn Wilkenmann; the Behavioral Track with discussion on Relationship Development Intervention, Floortime, ABA and Cognitive Behavioral Therapy; the Legal Track discussion on special education, inclusion, the DDD/AHCCCS appeals process, ABLE, special needs trusts, SSI and guardianship; and the Speech Track with discussions on aug com devices, Apraxia, social groups and PEERS.
Saturday includes Social Track with Pam Crooke who is a national leader and speaker for Social Thinking; the Medical Track with national speakers Dr. Amy Serin, Dr. Frye, Dr. Sidney Rice and Jim Adams, Phd; and the Teen/Young Adult Track with discussion on transportation, apps and technology for success, a panel discussion on services available for adults and job coaching services.
5025 E Washington St, Phoenix AZ 85034
Free Parking *Includes Breakfast and Lunch*Certificate of Professional development*Exhibitor Fair*
Register for conference Register to be an exhibitor
Friday Feeding Track
9:00-10:00 Dawn Wilkenmann
10:30-12:00 Dawn Wilkenmann
1:00-2:30 Dawn Wilkenmann
3:00-4:30 Dawn Wilkenmann
Friday Behavioral Track
9:00-10:00 Relationship Development Intervention™~ Guiding your Child through Developmental Milestones-Kim Isaac-Emery. Relationship Development Intervention™ (RDI®) is a comprehensive family-focused program that supports the development of social, emotional, and cognitive development. The program teaches parents how to scaffold life experiences and situations so that they will provide a ‘just right challenge’ for their child. Through this process, the child learns that he or she can experience challenge and success. Based on the most current brain, developmental, autism, and outcome research we have learned that many families of children with autism and concluded that children with autism are unable to take part in the Guided Participation Relationship (GPR) because the autism has derailed the ‘feedback loop’ between child and caregiver. The RDI program is valuable for parents who have children of ALL ages.
10:30-12:00 “The Power of Relationships: Using Floortime to help children with autism engage with others with warmth, joy, and a sense of wonder.” Terry Matteo, Phd. 12:00-1:00 Lunch
1:00-2:30 ABA in an inclusion setting – Michelle Mackey. Learn about the benefits of inclusion, the possible prerequisites for placement in an inclusion classroom, what learning can look like in an inclusion classroom and how social skills can develop in an inclusion setting both naturally and through intervention .
3:00-4:30 Anxiety Speaks: an understanding of how anxiety impacts individuals on the Autism Spectrum, and pathways to treatment-Paul Carollo, Examining how Anxiety impacts daily functioning, and creates challenges to developing healthy connections to people, places and new situations.
Friday Speech Track
9:00-10:00 AAC: From Evaluation to Implementation-Staci Neustadt and Sarah Hales. Augmentative and Alternative Communication (AAC) systems provide a way for people to communicate when oral communication is difficult. One option is a speech generating device which provides voice output. Through new technology and social media, people now have more information and access to AAC than ever before. This is both exciting and overwhelming. AAC: Evaluation to Implementation will provide you with tools and knowledge to better understand the process to receive an AAC system that works for you or your family member as well as what to do with the system once you receive it.
10:30-12:00 When Children With Autism Have Apraxia–Anita Werner. Some children find it is difficult to command their mouth to move the way they want it to, in order to speak correctly. The problem is with the “wiring” or the brain sending the signals to the mouth telling the articulators (i.e., lips, tongue, jaw, etc.…) what to do. This problem is called Childhood Apraxia of Speech and we are finding that more and more children with autism have this speech disorder. What are the characteristics, how do you know if your child has it, and what is done to help children with autism that have apraxia?
3:00-4:30 The PEERS Curriculum – Nicole Matthews. PEERS Curriculum aims to teach participants how to make and keep friends, and to teach parents strategies for coaching their teens or young adults as they practice new skills in their natural environments. This presentation will describe the components of the PEERS curriculum, describe individuals for whom the PEERS curriculum is an appropriate treatment, and report findings from a study conducted at the Southwest Autism Research and Resource Center (SARRC).
Friday Legal Track
9:00-10:00 Navigating the Appeals Process in AHCCCS (DDD and Behavioral Health)-Ann Ronan, Esq.
10:30-12:00 ABCs of Special Education Law: Advocate Better for your Child-Hope Kirsch and Lori Kirsch-Goodwin. In this workshop, we will provide a comprehensive overview of the laws applicable to special education so that parents can better understand their child’s rights and their rights as parents. We will walk you through the laws that govern what schools must do, and what you can do to ensure that your child is receiving the education to which he or she is entitled in public schools and charter schools. Key topics to be discussed include eligibility, evaluations, placement vs. location, IEPs v 504s, how to prepare for RED, MET and IEP meetings, communication techniques and dispute resolution.
1:00-2:30 The Basics of Guardianship, Special Needs Trusts, and the ABLE Act Including an Update on Legislation-Emily Kile, Esq. and Jennifer Kupiszewski, Esq
3:00-4:30 Why Inclusion Matters for Students with Autism-Susan Marks
This presentation will introduce the significant evidence supporting inclusive practices for students with autism, the basic principles and legal requirements of placement in the least restrictive environment, and important considerations for ensuring that inclusive practices are implemented by the school.
Saturday Speech Track
9:00-10:00 The Informal Dynamic Assessment and Core Treatment Strategies-Pam Crooke
10:30-12:00 The Informal Dynamic Assessment and Core Treatment Strategies-Pam Crooke
1:00-2:30 The Informal Dynamic Assessment and Core Treatment Strategies-Pam Crooke
3:00-4:30 The Informal Dynamic Assessment and Core Treatment Strategies-Pam Crooke
Saturday Medical Track
9:00-10:00 The Neuroscience of Autism-Dr Serin
10:30-12:00 Dr. Fry
1:00-2:30 Childhood Postinfectious Autoimmune Encephalopathy: what is the connection between infection, the immune system and psychiatric illness-Sidney Rice, MD. CPAE is a condition in which prepubertal children develop obsessive-compulsive disorder after an infection. This response can occur in children with any medical background and treatment includes both anti-inflammatory medications and behavioral/psychiatric treatments. This presentation will review our present understanding of the condition and treatment options.
3:00-4:30 GI and Nutritional Treatments for Autism-Jim Adams. This presentation will focus on two recent major studies. The first study is on the use of Microbiota Transfer Therapy to treat gastrointestinal problems in children with ASD. The study resulted in an 80% reduction in GI symptoms, and a substantial reduction of autism symptoms, with benefits lasting well after treatment stopped. The second study is a 12-month study of a comprehensive nutritional treatment for children and adults with ASD. Treatment included a special vitamin/mineral supplement, essential fatty acids, Epsom salts, carnitine, digestive enzymes, and a healthy allergen-free diet. There were many major improvements in the treatment group compared to the control group, including substantial increases in non-verbal IQ and large gains in developmental age.
Saturday Teen/Adult Track
9:00-10:00 Vanessa DiCarlo (apps)
10:30-11:15 Ken – Job Tips and Tricks
11:15-12:00 Panel Discussion
1:00-2:30 VALLEY METRO 101-Deloros Nolan. Valley Metro bus and light rail can take you school, your job, entertainment and many places around the Valley…learn how! Some of the topics to be covered: Overview of the transit system, How to plan your bus/light rail trip, Fare policy – Youth & persons w/ disabilities and senior citizens get a reduced fare, Bus and light rail feature, Accessibility on vehicles, Neighborhood circulator, Dial-A-Ride and ADA certification.
3:00-4:30 Partners in Transition-Betty Shoen will lead a team of experts-This presentation from the Arizona 3Community of Practice on Transition is a collaboration from the State agencies (Department of Economic Security, Division of Developmental Disabilities, Rehabilitation Services Administration; Arizona Health Care Cost Containment System, Behavioral Health Services, Department of Health Services, Office for Children with Special Health Care Needs, for example) who provide services to youth with special needs as they move from secondary school to adult life. Each agency representative will cover the basic eligibility information for agency services, and talk about the types of services available to those who qualify, plus how to gain access for your youth with special needs.
James B. Adams, Ph.D., is the Director of the Autism/Asperger’s Research Program at Arizona State University. His research focuses on the medical causes of autism and how to treat and prevent it including the areas of nutrition (vitamins/minerals, essential fatty acids, carnitine, digestive enzymes, special diets), oxidative stress, gut problems, gut bacteria, toxic metals, and seizures. He has published over 150 peer-reviewed scientific articles, including 35 related to autism. He is also the President of the Autism Society of Greater Phoenix, the President of the Autism Nutrition Research Center, the co-leader of the Scientific Advisory Committee of the Autism Research Institute, and chair of the Scientific Advisory Board of the Neurological Health Foundation. He has an adult daughter with autism. www.adamsautismresearch.com
Paul Carollo is the Program Manager of the Relationship Based Autism Center at Child Family Support Services. Prior, he worked for Touchstone Behavioral Health for seventeen years where he was the creator and program manager of the Family Centered Autism Program. Paul holds a B.A. in Sociology and a Master’s of Community Counseling. He has completed his coursework at Northern Arizona University to become a Board Certified Behavior Analyst. He currently holds a certification as a National Certified Counselor and is a Licensed Professional Counselor. Paul has experience working with individual and families with the following challenges: ADHD, OCD, ODD, Autism, and Asperger’s syndrome. Paul is an experienced Functional Family Therapist receiving eight years of training in this area. Additionally, he has experience leading social skills and parent education groups specific to the Autism spectrum. Paul has presented at various conferences on Autism as well as provided consultation to various schools in the valley. Paul has received training to administer the ADIR test. He has completed training to administer the ADOS-2. Furthermore, Paul is trained as a Level I and II trauma therapist. He receives continuing education in the field of Autism.
Sarah Hales has been practicing as a pediatric speech-language pathologist since 1995. She completed her Bachelor’s degree in Early Childhood Education at The University of Missouri-Columbia, and then received her Master’s degree in Speech-Language Pathology from The University of Kansas. Sarah has experience treating children of all ages and a wide variety of diagnoses. Her areas of specialty include Early Intervention and Augmentative and Alternative Communication (AAC). She also has many years of experience successfully treating children with motor speech disorders, such as Childhood Apraxia of Speech (CAS). As an AAC Specialist for the last 11 years, Sarah has extensive experience training families and teams (therapists, teachers, respite/hab providers, etc) who work with individuals of all ages who use high-tech communication (AAC) devices. In addition, she serves as an evaluator for one of the AAC Evaluation Teams in Arizona. In recent years, she has used her AAC expertise to assist adults who have ALS (a.k.a. “Lou Gehrig’s Disease”) who have a need for high-tech eye gaze communication devices. Sarah has presented on AAC-related topics nationally and locally, including at the 2015 National Down Syndrome Congress Convention. She currently serves as the Co-Chair of the Board of Directors of the Down Syndrome Network of Arizona.
Emily B. Kile is a graduate of the Northeastern School of Law in Boston, Massachusetts. She graduated Magna Cum Laude and Phi Beta Kappa from the University of Colorado, Boulder and holds a Masters Degree in Psychology from Boston College. She is a member of the National Academy of Elder Law Attorneys (NEALA), past President of the Arizona Chapter (2008), and a member of the Academy of Special Needs Planners and the Special Needs Alliance. Emily is Chair of the Foothills Caring Corps. She is licensed to practice law in Arizona. She has been licensed to practice law since 1993. The Supreme Court of Arizona has re-appointed Emily to serve on the Fiduciary Board through December 31, 2016. The Fiduciary Board oversees the approval and discipline of fiduciaries licensed in the State of Arizona by the Supreme Court.Her practice is focused on estate planning and related matters, including Medicaid (ALTCS), VA and long term care planning, special needs planning, guardianship and conservatorship issues and estate settlement/probate.Emily’s niece, Marisa, has Down Syndrome; allowing Emily some insight into issues faced by people with special needs and their families.
Kim Isaac-Emery is an autism spectrum disorder specialist that specializes in parent training and in work with teens and adults on the autism spectrum. Kim has been in the field of autism since 1997, with experience as an autism therapist and consultant. As a graduate of both University of Maryland and Capella University, specializing in Psychology (B.S.) and Counseling Studies (M.S.), she is currently serving as private practitioner working with a broad spectrum of clients. She maintains a professional certification in Relationship Development Intervention™ (RDI®) and has been a Certified RDI® Program Consultant since 2005. While Kim’s private practice, Autism with Excellence LLC, is based in Phoenix, Arizona, she also travels to nine different states within the country consulting with individuals, families, and schools. Her areas of expertise are Relationship Development Intervention™ Programming, cognitive-behavioral / person-centered therapy strategies with teens and adults on the autism spectrum, parent and teacher education, training, general consultations and program troubleshooting.
Hope Kirsch is an attorney at the Arizona special education law firm of Kirsch-Goodwin & Kirsch where she partners with her sister Lori Kirsch-Goodwin. Hope is a licensed special education teacher and 25-year litigation attorney. For over 15 years, she has represented students and their families throughout Arizona in all school related matters, from IEP advocacy to Due Process, appeals, 504s and OCR complaints, bullying, restraint and seclusion and personal injury. The firm handles disciplinary matters (suspensions, long-terms suspension, expulsions) of both special education and general education students, and in higher education as well. Hope was a special education teacher and special education coordinator for 18 years before embarking on a career in law. She worked in the New York City public schools in settings ranging from self-contained classes to special education day schools, day treatment programs and hospital programs. Throughout her career as an educator, Hope worked with students with autism, emotional disabilities and multiple disabilities. She has written hundreds of IEPs, served as a witness for the NYC Department of Education at due process hearings, and supervised and trained teachers in curriculum, methodology, writing IEPs and behavior management techniques. She earned a B.S. from Boston University in Special Education in 1975, an M.A. in Special Education from NYU in 1977, and post-graduate work in educational supervision and administration at NYU and Baruch College of the City of New York. She obtained her law degree from Brooklyn Law School’s evening division while continuing her work in education. Hope began her law career as a judicial clerk and then as a civil and commercial litigator as she began building a special education practice. Hope is admitted to the state and federal district courts in NY, NJ and AZ, and the 9th Circuit Court of Appeals, and AV® Preeminent™ rated (5.0 out of 5.0) by her peers and judges for the highest level of ethics and professional excellence.
Lori Kirsch-Goodwin has been a litigation/trial attorney for almost 30 years and has first chaired over 35 jury trials. She obtained her B.A. at Syracuse University and her law degree at the University of Bridgeport (now Quinnipiac University). She is admitted to the state and federal district courts in New York, New Jersey, Arizona and the 9th Circuit Court of Appeals. Lori entered the special education arena over 16 years ago when one of her twin boys was evaluated for special education and related services, and has been advocating for and representing other families since. She is an AV® Preeminent™ rated attorney by peers and judges, representing the highest rating in legal ability and ethical standards. Her legal advocacy ranges from obtaining eligibility for IEPs and 504s, assisting at IEPs, METs and 504 meetings, disciplinary matters, early dispute resolution of matters, due process hearings, and appeals. Lori brings her litigation skills to the table as well as her sensitivity for the families she represents.
Jennifer Kupiszewski has an undergraduate degree from Arizona State University in Microbiology in 1997. She entered law school in 1997 on academic scholarship at ASU and graduating in 1999. Jennifer represented the represented the Arizona Department of Economic Security/Child Protective Services Division for six years in juvenile court cases involving dependency, severance and guardianship matters. At the Arizona Center for Disability Law as co-counsel on the class action lawsuit Jason K. v. Eden traveling to all corners of Arizona representing families in obtaining mental health services. Jennifer represented the Maricopa County Public Fiduciary in court cases involving adult guardianship and conservatorships Currently, in private practice since 2007 Jennifer is a Managing Partner with Kile & Kupiszewski Law Firm. Jennifer practices in areas of elder, juvenile, and probate law and navigating cases that as they move through and between these different court systems. Her practice focuses on cases involving adults and children with special health care needs and non-traditional families. Jennifer represents families in matters in which there has been abuse, neglect, and exploitation or when a family member is disabled or incapacitated and estate, trust and financial exploitation litigation. Jennifer currently serves on the Board of Raising Special Kids, the Board of Directors of the Maricopa County Bar Family Law Section, the Board of Directors of the AZ chapter of the National Association of Elder Law Attorneys and is the Chair of the State Bar Elder Law, Mental Health and Special Needs Planning Council. She is also on the Arizona Center for Disability Law’s Protection and Advocacy for Individuals with Mental Illness Council. Jennifer has a strong commitment to family and married into a large polish family. Jennifer is married to Steve Kupiszewski and they have a blended family of five children and one tiny Yorkie.
Dr. Mackey is a Board Certified Behavior Analyst (BCBA-D). She is currently the clinical director of Scottsdale Children’s Institute, a school readiness program that uses applied behavior analysis (ABA) methodologies to teach children (with and without disabilities) academic, self-management, play and social skills. She obtained her doctoral degree in Applied Behavior Analysis from Columbia University. Furthermore, she has previously worked as a general education and special education teacher in inclusion and non-inclusion settings in public schools. For 4 years, she served as the lead teacher of an ABA inclusion classroom in a public-school district in New Jersey. Throughout her career, she has had over 10 years of experience with working directly with children with autism, intellectual disabilities, learning disabilities, ADHD and other childhood disabilities in private schools, public schools, clinic-based settings, and home settings.
Nicole Matthews is a research scientist at the Southwest Autism Research & Resource Center (SARRC) in Phoenix. She earned her Bachelor’s degree in psychology at the University of California, Santa Barbara where she graduated with Highest Honors. She went on to complete her Master’s degree in social ecology and doctorate in developmental psychology at the University of California, Irvine. Nicole’s research interests include improving access to early autism screening and diagnosis, adaptive functioning and cognitive development in individuals with autism spectrum disorder (ASD), and the transition to adulthood for individuals with ASD without intellectual disability. Nicole’s research has been published in multiple peer-reviewed journals, including the Journal of Autism and Developmental Disabilities, Autism Research, Autism, and Developmental Science. She was the principal investigator of a randomized control trial of the PEERS curriculum funded by the Organization for Autism Research, and she is a certified provider of the PEERS curriculum for adolescents.
Staci Neustadt is a Speech-Language Pathologist with a rich diversity of experience and is an impassioned medical professional with a proven capacity for creativity and innovation in the entrepreneurial sphere.
Staci has been working in the field of Speech-Language Pathology for over 15 years. A graduate of the University of Wisconsin-Madison (BA, Communication Disorders), and Arizona State University (M.S., Speech-Language Pathology), Staci has been proactive in building her skills and understanding, and encouraging the growth of all around her. While her passion is to empower all of those with diverse abilities, she focuses her passion on helping those on the Autism Spectrum. As a Certified Autism Specialist she has lead social skills groups, provided individual speech and language therapy for kids with a variety of disabilities and worked closely with families of children that use Augmentative and Alternative Communication (AAC) devices.
In 2007, Staci used her experience and research to assist in developing Alexicom Tech’s Augmentative and Alternative Communication apps to assist those with complex communication needs. Through her company, Alexicom Tech, Staci has spoken at conferences and continues to educate other professionals on AAC.
Dolores Nolan is Community Relations Coordinator at Valley Metro. She has more than 18 years experience in educational outreach. Prior to joining Valley Metro in 2000 to do presentations on the transit system, she did presentations on art for Phoenix Art Museum where she is still a docent. Dolores’s mission is to promote all transportation modes and to increase usage by communicating the benefits of Valley Metro’s services and programs to any group. Valley Metro staff is available for presentations to schools, businesses, human services organizations as well as participation in general community events. This outreach helps inform all members of the Valley of their transportation choices. Valley Metro involves youth in the transit system in creative ways like the Cool Transit STUFF Art Contest for third graders and the Design a Bus Wrap Contest for high school students where their artwork is showcased on a large scale. Dolores practices what she preaches by taking the bus and sometimes light rail to work.
Dr. Rice is a Professor of Pediatrics in the University of Arizona Department of Pediatrics. She holds a bachelor’s degree from Stanford University, a doctoral degree in Medicine from the University of Arizona, and a master’s degree in health evaluation sciences from the University of Virginia. She completed a fellowship in developmental pediatrics at the University of Virginia. She has been on the pediatric faculty at the University of Arizona since 2005. She has cared for children with disabilities and their families for over 20 years and is dedicated to improving care and service systems in the state of Arizona.
She is the Co-Director of the Childhood Autoimmune Encephalopathy Program at the UA, a program supported by the National Institutes of Mental Health. The program has both a clinical and research focus.
Anne Ronan has been practicing in the area of health law for the poor and uninsured since graduating from Arizona State University College of Law in 1979. She worked with Community Legal Services for 11 years with an emphasis in representing low income individuals in obtaining health care through various State and Federally funded health care programs for the poor. She worked for the Arizona Center for Disability Law (formerly the Arizona Center for Law in the Public Interest) for 13 years during which time Anne represented children and adults with disabilities in obtaining necessary and appropriate medical and mental health services. Anne is one of the attorneys for the class of adults with serious mental illness in Arnold v. Sarn and the class of children entitled to Medicaid funded mental health services in J.K. v.Gerard, and in B.K. v. Tinsley a class action on behalf of foster children. Anne is now employed with the Arizona Center for Law in the Public Interest where she continues to represent children and adults in obtaining necessary health care.
Amy Serin, PhD, neuropsychologist, directs Serin Center, a comprehensive assessment and integrative treatment center for ADHD, learning disabilities, depression, anxiety, gifted intellect, autism spectrum disorders, life stressors, and developmental delays. Dr. Serin’s professional team integrates neuropsychology, psychology, and developmental pediatrics for successful outcomes. Services for children, adolescents, and adults include neuropsychological assessment, neuromodulation, EMDR and CBT therapy, medication consults, intensive learning disability remediation, and more. Dr. Serin is an Arizona native and was Valedictorian (Moeur Award) and Advocate of the Year at Arizona State University in 1996. She is the president of the Arizona Neuropsychological Society, inventor of TouchPoints neuroscience wearables, and is a frequent keynote presenter at medical and psychological conferences.
Anita Werner, who founded Pediatric Speech and Language Specialists in 1989, has more than 30 years of experience as a speech-language pathologist. She maintains an active clinical practice with the goal of providing the most advanced, effective speech and language therapy available anywhere. In addition to specializing in social communication difficulties, Anita has extensive experience in the treatment of individuals with receptive/expressive language disorders, speech disorders, auditory/language processing disorders, childhood apraxia of speech and executive function difficulties